Wednesday, December 31, 2008
I just got back from Arby's to get myself a Reuben sandwich....to make sure I would get my official "corned beef and sauerkraut" in for New Year's Eve! I have to say it was delicious and is already gone!
I am going to nap until a bit later.....so I can stay up to see the ball fall.....
Happy New Year everyone!
Tuesday, December 30, 2008
Sunday, December 28, 2008
I wish I had time to jump in the car and drive to an open area to capture better shots. I happened to look outside my back window when I was talking on the phone and saw the sky lit up with the most amazing colors...I knew it would be a gorgeous sunset. We have had a couple of these the last few days..they are spectacular to watch but they go very fast...changing in colors before disappearing altogether over the horizon or behind clouds. These are not ideal shots as I snapped them through my window....but this gives you an idea of what I saw.....
Friday, December 19, 2008
So I think they said that the last time...and then they did stick the tube in again....but also sprayed his lung twice....so maybe that is the max number of times? I don't know. Hopefully will find out more later.
Thursday, December 18, 2008
Wednesday, December 17, 2008
(sunset June 2008 - click to see full size)
He was very talkative.....but I think I finally talked him out because all of a sudden he said "I think I'm going to hang up Melinda," and he sounded like he could fall asleep.
He got up and walked around the hospital floor 3 times today.....and he told some hilarious stories that got me and him both laughing so hard he had a coughing spell. (I will let him decide if he wants to share them with you all, but knowing dad....he will one day whether we all want to hear them or not!) haha
Before discharge they will be moving him to another room as the floor he is on is going to be remodeled. So in the next day or so he will go to another floor and another room.
The "procedure" today was so/so. Some of the stuff apparently squirted out all over the bed and nurse when the doctor was pushing it into the tube in his lung....as the tube had been cut at an angle and the stuff was not flowing in as good as it did the first time. BUT they think they got it covered pretty well. Dad said it did not bother him much this time round.
He is anxiously awaiting tube removal and he hopes they might do it tomorrow. They have to check his x-rays first to make sure his lung is inflated.
Tuesday, December 16, 2008
The chest tube will NOT be removed today. The surgeon wants to come in and perform another TALC procedure Wednesday to try to make sure the lung will be covered completely this time and they have not missed any spots....
so that is scheduled for Wednesday....no idea when the tube will come out. Maybe the day after or Friday. No idea when he will come home...and a nurse told dad this morning she did not want to alarm him but when they pull the chest tube ...that can sometimes cause the lung to collapse again.
and he seemed in good spirits. He was very surprised to see me and my son Noah as he did not think anyone would be down to see him because of pending possible bad weather. BUT when it looked like there was not going to be any bad weather we decided to head on down for a visit. He was very talkative....and was happy the second TALC procedure had been performed before he had time to think about it and it was over with. He does not know for sure but is hoping they remove his chest tube tomorrow and maybe......MAYBE if that is successful....maybe he might come home later this week.
Of course when I asked him if the DOCTOR TOLD HIM THIS.....he said NO. It was HIM hoping that would be how things would pan out.
So considering all he has been through he seemed more like himself.
Monday, December 15, 2008
Well dad called mom and said "you're not going to believe this but they did that TALC procedure already." Mom thought he meant the surgical one....and he said NO. Apparently though they gave him options the surgeon just does NOT want to perform that surgery on dad. SO they did the same procedure they did about 2 weeks ago where they go in and blow that stuff directly into his lung via the tubes I think already there.
He told Mom it did not hurt near as bad this time as before....and I am sure that is because he had some of that stuff in there already and some had also caused scar tissue to form which would probably dull the pain from the TALC this time.
I told Mom they should ASK the surgeon WHY he is so adamant about NOT performing the other type of surgery.....and make him give a reason. MAYBE he did with Dad this morning.....I have not yet talked with Dad so I don't know for sure. Maybe the surgeon does not think Dad could tolerate the surgery? I do know he has said even WITH the surgery there would be NO guarantee this could happen again.
So perhaps he figures if there is no guarantee anyway....a double dose of that sticky stuff might do the trick just as well and be less invasive and stressful on the body for Dad.
That is the latest as we know it now. AND now for your viewing pleasure.....a couple of shots of ornaments from my Christmas tree....
The tree stands so tall I cannot get up there to put our lighted star at the top as I have no ladder...and I have not hung any icicles or tinsel yet...I try to make a very old-fashioned children's type tree....
aglow at night......
and to be honest......he just doesn't have any real good options left to choose from.
He has so many blebs (bubbles) on his lungs that they cannot go in and remove/fix them all. If they did it would remove most of the lung tissue.
They cannot remove the lung that has collapsed three times because his remaining lung is not much better than the one that has collapsed three times.
So it sounds like he is down to 2 choices....doing nothing and pretty much being guaranteed this lung will collapse again and perhaps multiple times....or having that surgery laparoscopically (where instead of cutting you wide open they go in with about 3-4 smaller incisions and use scopes...etc)....where they blow in more of that talc/sticky stuff. Dad said the surgeon told him they basically take the lung and move it all around while in there to make sure they completely cover it.
BUT they also told dad if they did that he would be in a lot of pain for at least 4 days afterwards.....as they put so much of that stuff in your chest cavity and lung ...but they could control the pain with medication after the surgery. AND there is still no guarantee though I suppose the odds are better than not doing the surgery.
Regardless of what he finally decides to do....one thing is for sure....his lifestyle will change...as I am sure he will have to be less active. I can understand he would always be worried his lung would or could collapse again at any moment....even with a sneeze or cough....or just sitting around. I imagine in time the longer one goes without it collapsing the more one would start to forget about the threat hanging over one's head...but I know his lung capacity is probably never going to be the same and it was not great to begin with.
I will probably go see dad tomorrow...no...I guess it would actually be later on today. He sounded pretty good on the phone tonight.
Saturday, December 13, 2008
When dad arrived at the hospital his lung was collapsed 30%.....and then soon it was 50%......and finally he moved or something and it collapsed completely. So they had to do a new chest tube....in a new location.....an even BIGGER tube....and this time it is bothering him a lot more than last time. He is still coughing up stuff and afraid to cough as he is afraid his lung will collapse again but they told him to cough up the stuff and now that he has a chest tube in he should not fear his lung will collapse. The tubing to his lung got a kink in it once and cut off the suction and he could not breathe much at all which caused all the ICU team and staff to rush to his room to figure out quickly what was wrong. They finally discovered a kink in the tubing and got that worked out and all was well again.
The tube will be in at least until Monday and soon they will talk about the next step which is probably going to be that procedure in surgery. IF all goes well Dad asked if he might be back home in time for Christmas and the doctor said if all went well and nothing unforeseen happened he should be back home for Christmas.
Dad sounded very thankful he could breathe again and to be honest that he was alive....and I know he as well as all of us appreciate your thoughts and prayers. Keep mom in your prayers too as she is worn out. I swear when she called me real early this morning and her voice was cracking and she said "you are not going to believe this but..." that I did think the worst news was coming next from her mouth to me over the phone but that was not the case. It has been a mix of emotions and strangeness to say the least the last 24-48 hours and mom I am sure is about exhausted.
I could not believe it. Today was a bad day for him.....I called my mom and was talking to her to tell her I was going to bring her mom (my grandma) and son over tomorrow to see dad.....and she said it may not be a good time. She said that dad had a bad day......was having a hard time breathing again and had a bad cough. He had just been to the doctor on Wednesday and they said his lungs were clear.....sounded good....etc.
Today they called the home health nurse and she came out and she said his lungs sounded okay too.....and his oxygen saturations were good....but when I talked to mom and then dad......there is NO WAY his lungs could be clear or his saturations okay. I asked him what his saturations were......and this is WITH oxygen...and they were only about 90 to 92%. That is not great especially if you have oxygen....and he had a coughing spell and it sounded like his lungs/chest was full of crap....I mean it was nasty sounding......worse than I have heard and I have worked in a pulmonary clinic with kids with cystic fibrosis!
Dad was not able to get up most of the day to do anything......could no longer make it to the bathroom or really even stand up without becoming very breathless......and almost falling down.
I told dad that I thought he should not wait around.....I asked him how long he wanted to go on like that? That I knew he did not want to go to the hospital again but I felt he SHOULD go...as they could make him more comfortable......breathe easier......and give him a breathing treatment if needed which I felt he needed....increase his oxygen which I felt he also needed......and they could make sure nothing was wrong inside his chest.....as it sounded to me like he might have fluid building up. We all could not imagine his lung could possibly have collapsed again.
Mom at first I think just thought dad was anxious and panicky a bit....and that was making his breathing worse. Which it would....but after I talked to him I told her that he did not sound panicky to me....he sounded like he just could not get air in and his lungs were full of crap. I told her too that I thought he should go to the hospital ....and I told dad that numerous times.
She finally decided to call the after hours and home health nurse and I told her they would all tell her to call 911 if he was at that point...and have him be taken back to the hospital.
So she did.....they took him...mom just called.......and guess what? HIS LUNG HAS COLLAPSED AGAIN!!!!!!!! THE SAME ONE......and now they are faced with all the crap I wanted them to PRESS those doctors for answers on......WHAT ARE THEY GOING TO DO NOW? THEY told dad originally they would NOT put another chest tube in.....but that is what they are doing right now. They also said they would not operate....but this being the THIRD TIME that lung has collapsed....I BET they will HAVE to do surgery now.....to either resect the bad portion off or remove that lung entirely. How well he will do then will depend a lot on the remaining lung and the condition it is in.
SO dad will be sedated for the chest tube....and in the hospital probably this time for awhile.....and maybe over another holiday? NOT sure yet about that or what will happen but ANY AND ALL prayers are appreciated!
I till try to keep everyone updated or my mom will on dad's blog or her blog.....
Friday, December 5, 2008
Monday, December 1, 2008
Friday, November 28, 2008
Mom and Dad's anniversary July 12, 2008
Dad got his catheter removed.....and they are waiting on culture results to find out for sure whether it is a kidney or bladder infection and then how to treat it.
They attached a shorter tube to the chest tubing and attached that to the new portable machine so he can get up and walk around.
He DID get up and take a walk or two.
The chest tube will remain in there over the weekend at least.
The doctors came in to see him. They have all said his lungs are pretty bad....but the one doctor said he had seen some improvement in them since he was admitted. At least he felt there had been. Dad may have to go home on oxygen for a few days or so until he regains his lung functions/strength back which might be a process..because a lot of the tissue in his lungs has been damaged from the emphysema.
Mom and dad still don't know for sure what his options would be if this ever happened again....but I think the doctors are hoping this sticky stuff creating that seal inside his lung will work and hold for a very long time. I imagine the only other option would be surgery...even if they would not want to perform it.
Mom said dad and her watched a movie in his room today on the television and dad really laughed a lot...so he was in better spirits and feeling better it sounds like.
I will go see him again tomorrow or Sunday....maybe I will have some new photos after that.
He also now is having kidney stone issues or bladder/kidney infection or both. They are running tests to see what is wrong and how to treat it. He has kidney stones and one really large one that might be causing him problems....not sure if it would be able to pass on its own. It definitely would never make it through a catheter so his bladder would then become blocked and the doctor said he would definitely know if that happened. Then they would have to do surgery to remove the stone!
So when it rains it pours. He sounded pretty good on the phone.....but I know is not feeling great and is in some pain.
I wanted to go see him yesterday afternoon since it was Thanksgiving and I wanted to surprise him as I knew he figured no one would show up to see him as it was a holiday..etc. My son and I and my one sister and her daughter drove down to surprise him. When we walked in the room this is what we saw:
I said "OH I have GOT to get a picture of this!" to which dad responded when I told him I brought my cameras "GOOD! I figured that will likely be the ONLY way a picture of me gets online!" He wanted to share this with everyone......and I sent them to mom to post...but she may not have time. SO I decided to post them here. That THING on his head is something new where they WASH your hair by placing it on your head....it gets hot....there is some moisture in there too or maybe the heat creates steam? It washes the hair ......I thought that was a pretty amazing thing.
Dad still has the chest tube in...and about 3 IV's in his arms.......a catheter still in place too....he is hooked up to so many tubes and gadgets he could never move too far. BUT when we got there....he was sitting up in the chair for the first time....and had already been in the chair for about 2-1/2 hours. He has been having problems with his heart rhythm and it beating too fast so they have him on IV drips for that. AND give him medicine to help prevent blood clots......
He seemed in good spirits but I thought his skin was looking a little yellow on his arms and parts of his face. He was very excited and happy I think to have someone come visit him. He said to me he was starting to wonder "gee does nobody love me?" I told him we were THANKFUL he was still here......on this Thanksgiving day....and I bet he never thought he would be in the hospital on Thanksgiving!
We had a nice talk......but dad let us know that his lungs are pretty much SHOT. He said the surgeon told him that they are pretty sure his lung will do this again one day.....and if so.....they do not know what they would do....but that they would NOT put in another chest tube....and the one surgeon said he would NOT operate on dad because of how bad his lungs are and because of his heart issues he has or has had in the past. The combination of heart issues and emphysema and asthma, etc. has not done his lungs any good. It has all taken a toll.
I am not sure what that means. I need to talk to one of the doctors and ask some serious questions. I told mom to ask some today and her and dad BOTH to ask questions...like what does that mean for me if it does happen again? WHAT are my options? I think they are hopeful this sealant they sprayed in dad's lung will help create a strong barrier....so if another bleb bursts......that seal would not allow his lung to collapse again. This is basically the same sort of repair they would do on the outside of the lung if they had operated....they resect away the bad portions and place a patch over the hole. Much like a flat tire with a hole in it. You can patch on the outside or inside.....dad's lung was patched on the inside with that sealant.
That "sticky stuff" as it has come to be known basically BURNS the lining of your lung.....which causes scar tissue to form. That creates the barrier.
The doctor told dad his lung was NOT reinflating to the capacity it should....and they did not know why...but maybe because he was not doing much but lying around. So they wanted to get him up to sit in the chair to allow the lung to drain. And drain it was! There was all sorts of bloody liquid coming out of that tube!
Pretty soon the SHAMPOO head-dress came off and dad started to look a lot better:
So at this point we are not sure what is going to happen. Dad thinks they may try to remove his chest tube TODAY (Friday November 28) but he is not positive. AND no one seems to know for sure what will happen if they remove the tube. Mom is exhausted. Mom is so tired she almost fell asleep at the dinner table yesterday. Dad is worried about her too.
I have to admit us kids did not know any of this until we went to see dad at the hospital because Mom had not yet mentioned this to us. I don't think we realized just how BAD his lungs might be and the fact that the surgeon told Dad outright that he would not want to do surgery on Dad.
Hopefully we will find out more today....
Mom will probably still try to keep everyone updated on Dad's blogs and her blog.....but if not.....you can check here as I will try to keep everyone updated too.
Please continue to say prayers for Dad if you are inclined. ANY would be appreciated. I told Dad about everyone giving him well wishes and leaving comments. He said to post these pics of him as it would probably REALLY bring the comments in! That sounds like Dad.
Tuesday, November 25, 2008
You know him here as oldmanlincoln Brookville Daily Photo
He was rushed to the hospital this morning with difficulty breathing...found out he had a collapsed lung....and they reinflated the lung but I still do not know any more than that.
He had a bleb (air sac/bubble) on his lung that burst causing the lung to collapse. He had this happen 20+ years ago too.
Anyway...ANY prayer for him and my mom(as she was really upset because dad really thought he was dying and kept telling her so)....would be greatly appreciated.
UPDATE: This was the same lung that collapsed before. SO now they may have to do surgery so this will not happen in the future.
more updates on his blog
Saturday, November 22, 2008
I had some leftover turkey that I needed to use up so I decided to find a recipe for homemade turkey pot pie and make one today. This recipe is soooooo delicious and all made from scratch so I wanted to share it now BEFORE Thanksgiving and leftover time!
- 1 recipe pastry for a (10 inch) double crust pie
- 4 tablespoons butter, divided
- 1 small onion, minced
- 2 stalks celery, chopped
- 2 carrots, diced
- 1 tablespoons dried parsley
- salt and pepper to taste
- 1cube chicken bouillon
- 1 cup water
- 1 cup of turkey drippings/broth/stock
- 3 potatoes, peeled and cubed
- 1 1/2 cups cubed cooked turkey
- 3 tablespoons all-purpose flour
- 1/2 cup milk
- Preheat oven to 375 degrees F. Roll out bottom pie crust, press into a 10 inch pie pan, and set aside.
- Melt 2 tablespoons butter in a large skillet over medium heat; add the onion, celery, carrots, parsley, and salt and pepper. Cook and stir until the vegetables are soft. Stir in the bouillon/broth and water. Bring mixture to a boil. Stir in the potatoes, and cook until tender but still firm.
- In a medium saucepan, melt the remaining 2 tablespoons butter. Stir in the turkey and flour. Add the milk, and heat through. Stir the turkey mixture into the vegetable mixture, and cook until thickened. Cool slightly, then pour mixture into the unbaked pie shell. Roll out the top crust, and place on top of filling. Flute edges, and make 4 slits in the top crust to let out steam.
- Bake in the preheated oven for 15 minutes. Reduce oven temperature to 350 degrees F and continue baking for 20 minutes, or until crust is golden brown.